Scleroderma & Raynaud's UK

Scleroderma & Raynaud’s UK (SRUK) launched in April 2016 and is the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud’s phenomenon. Over 10 million are believed to be affected by the conditions. We are delighted to be partnering with Freedom Insurance who can offer travel insurance to those affected and be able to give us a donation after every premium is sold, helping our cause!

Freedom will give a donation to Scleroderma & Raynaud's UK if you follow the quote button on this page or use code SRUK when you purchase travel insurance. Be sure to mention SRUK if you arrange a quote by telephone.

SRUK’s Vision

A world where no-one has their life limited by Scleroderma and Raynaud's.

Our Purpose

Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness, and understanding of the conditions and providing information and support to all those affected.

Our Strategic Aims

• Awareness - Increase awareness of Scleroderma and Raynaud’s with the public and health professionals.

• Empowerment - Enable more people with Scleroderma and Raynaud’s to manage their conditions through access to high quality information, support, and guidance.

• Healthcare - Ensure all people with Scleroderma and Raynaud’s across the UK have access to high quality, integrated health, and social care services, which are responsive to their needs.

• Research - Ensure that research funded by SRUK translates into better prevention, diagnosis, and treatment outcomes. Infrastructure Be an effective and efficient organisation, with the resources we need to achieve our goals.

• Infrastructure - Be an effective and efficient organisation, with the resources we need to achieve our goals.

Values

Our values inform how we deliver our services, the choices we make and how we work with, support, and develop our staff and volunteers.

SRUK is: Collaborative in the way we work. Driven to see real change. Trusted because we are open and honest about the way we work. Compassionate because we always put the person first.

What We Do

Improving the lives of people with scleroderma and Raynaud's is central to everything we do. We want everyone with the conditions to live as full and unlimited a life as possible, until we find a cure.

• We fund research - We are driven to make real progress towards more effective treatments and a cure. We invest in innovative research projects at the forefront of the field.

• We provide support - Being there for our community when they need us is paramount – we do this through our helpline, local support contacts, support groups and our online forum. We also run educational events and have an annual conference to bring people together.

• We provide information - Our website and publications are accredited through the Patient Information Forum, we consult with professionals, specialists and our community to ensure that we are providing relevant, creditable and up-to-date information and that we are addressing any gaps in available information.

• We drive change - We also make our voices heard with decision-makers and politicians, pushing scleroderma and Raynaud's to the top of the health and social care agenda. We work in partnership with other organisations to ensure that we are amplifying our message.

To find out more about SRUK, or to access support or information, please contact SRUK directly:

Website: www.sruk.co.uk
Email: info@sruk.co.uk
Call: 02038935998
Office address: 18-20 Bride Lane, London, EC4Y 8EE

Scleroderma and Raynaud’s UK is a UK registered charity in England and Wales Reg. No 1161828.